Just wanted to wish you luck and hope that all is well.  Keep posting.

Big hug. xxx

 In my thoughts and prayers

XXX

 best of luck xxx

My thoughts are with you too hun.

I really hope that everything went well for you today

Thank you to you all for your good wishes, they were much appreciated. I really cannot believe it but I do not have MS. My MRI brain scan was completely clear, no scarring or tumours, very healthy in fact, about the only part of me that does feel healthy. Still there is something neurologically not right with me so more tests next week, more waiting, more anxiety. I may know more this time next week and I will keep you posted. Once again thank you for your thoughts. x x x

 Well, at least you know it's not MS. I know what it's like with the waiting, because my daughter had Hodgkin's lymphoma four years ago. Best of luck for the next stage . If there is  something wrong, let's hope it's not serious and treatable. xxx

Glad about your news. One thing ruled out. Just wanted to say that I had something similar a few years ago, and know the sinking dreading feeling associated with waiting, as do many others on here. Strangely, I was really angry and upset initially when they said I didn't have MS, (!!!) because it had taken so long to get there I just wanted something concrete and could not believe I had to start all the tests again, though obviously relieved!! It's a strange feeling, before the true relief kicks in.

They didn't come up with anything in the end - idiopathic neuropathy. painful nerves etc etc - always comes on now when  am stressed, no cause no nothing, just sheerly stress induced/extreme fatigue induced. It could be something as simple as that. Just wanted to share - not always the worse case scenario. good luck xx

That must be such a relief for you but, on the flip side, it must also be very frustrating to have to go through the test cycle again. Earlier this year, I became convinced that I had diabetes as I had a lot of the symptoms of it but the tests came back negative with nothing more than a Vitamin D deficiency (I was tested for a wide range of things). I'm still not 100% but don't know what more I can say to the doctors as there is nothing obviously wrong with me. Sorry-I've gone off track a bit there but just wanted to say I'm pleased for you but hope you do get some answers soon.

I have been in the same situation at least three times over the last 17 years.

dominant_tonic

 Strangely, I was really angry and upset initially when they said I didn't have MS, (!!!) because it had taken so long to get there I just wanted something concrete and could not believe I had to start all the tests again, though obviously relieved!! It's a strange feeling, before the true relief kicks in.

I can empathise with this! I have seen countless specialists and play 'consulant bingo' every time I see a new one; 'medical mystery' 'interesting' 'can I get a student to sit in on this one' 'I may write a paper/present you at a conference' feature commonly. I am a VERY complicated case as I have a firmly diagnosed, rare neurological disorder as well. Either it's this behaving atypically, MS or an as yet undiagnosed oddity. 

I long for a diagnosis as I have had every possible test done (multiple times) and cannot get critical illness cover, life insurance etc.

I hope you get the answers you are looking for. Out of interest, have you have DNA testing done to check for neurological genetic disorders? Good luck.

 

Yes I agree the not knowing is what I find unbearable and so unbelievably emotionally draining. My GP, consultant and husband (though he has no medical training, but he's not going to let that stop him!) were all subtley preparing me for a MS diagnosis, and I felt so deflated initially when it wasn't. Later today I am having a EMG test - where someone is going to stick needles in me give me a small electric shock and record the reactions in various muscles, this may or may not further aid a diagnosis. Thanks for all your stories and support X

I've had the EMG test on legs and lower arms, it's fine. Very odd as your muscles contract involuntarily but not painful in my experience. It can diagnose nerve damage in peripheral nerves if the current is slower than expected along the nerves. Good luck again!

 

OP, I was in you position 7 years ago. I was certain I was going to be diagnosed with MS and although it was a huge relief (and shock!) that I didn't have it, I knew there was still something wrong with me.

What are your symptoms?

I was eventually diagnosed with Hashimoto's disease 6 years later.

Hello

Thank you for asking I had been wondering if I should share my news and suddenly finding it at the top of the page probably means I should.

I am afraid it is very bad news indeed, I have motor neurone disease.

XXX

I am so sorry to hear this.

 Much love

xxxxxx

I don't know you but from one human being to another send my biggest hug. x

Thank you all, your thoughts are much appreciated.

 XXX